PPIE and Community Work

Working with patients, public contributors and community partners to shape this research.

Why PPIE matters

Patient and Public Involvement and Engagement helps make sure our research is shaped by the people and communities it aims to serve. Through discussions, workshops and community events, we listen to what matters most and use this to improve how the study is designed, explained and shared.

PPIE workshop

June 2026

The Many Faces of PPIE

We brought together researchers, patients and community partners to discuss the practical side of doing meaningful PPIE: how to start, how to budget, how to build relationships and how to work well with community organisations.

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Patient discussion group

Patient Discussion Group

Listening to patients and families

We held a discussion group with patients and public contributors to hear their views on sample donation, questionnaire design, ethnicity, heritage and how research information should be communicated.

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Community partners

Community Partnerships

Working with community organisations

Community organisations play an important role in helping us reach people, build trust and understand how research can be made more accessible and relevant to African-Caribbean communities.

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